2023 World Conference on Lung Cancer (Posters)-EP13.03. Developing Strategies for Delivery of Patient-Centered Care for Small Cell Lung Cancer

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This abstract discusses the need for patient-centered care for individuals with small cell lung cancer (SCLC). SCLC is an aggressive cancer with a poor prognosis and significant symptoms. The study aimed to understand the unique needs of SCLC patients and their caregivers. Thirty nurses, navigators, and social workers were interviewed, and the transcripts were analyzed using a hierarchical coding system.<br /><br />The results revealed that the quality of life for SCLC patients is influenced by both institutional and personal factors. These include the physical and cognitive effects of treatments, patient/caregiver needs, interactions with care settings, and patient education about SCLC and its treatment. Additionally, patient/caregiver vulnerabilities, psychological and emotional reactions, and social relationships also play a role in their experiences.<br /><br />The study found that caregivers face similar challenges to patients, such as work, finance, self-esteem, isolation, and negative emotions. Lack of social support makes SCLC even more difficult for patients. Therefore, caring for people with SCLC requires a careful assessment of the psychosocial and medical vulnerabilities of patients and their caregivers, as well as practical environmental concerns and social support.<br /><br />The authors emphasize the importance of implementing patient-centered care through a multidisciplinary team that addresses all aspects of quality of life affected by SCLC. This includes not only the practical aspects of daily living but also emotional support for patients and caregivers, especially those experiencing anxiety and depression.<br /><br />Overall, these findings have implications for the staffing, funding, and organization of SCLC service delivery. By understanding and addressing the unique needs of SCLC patients and their caregivers, healthcare providers can improve the quality of care and support for this vulnerable population.

Asset Subtitle

Jennifer King

Meta Tag

Speaker Jennifer King

Topic SCLC & Neuroendocrine Tumors: First Line Therapy

Keywords

patient-centered care

small cell lung cancer

SCLC

aggressive cancer

poor prognosis

significant symptoms

caregivers

quality of life

institutional factors

personal factors