2024 World Conference on Lung Cancer (WCLC) - Posters-P2.16F.03 Development of a Patient-Friendly Lung Cancer Lexicon

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The document discusses the development of a patient-friendly lung cancer lexicon aimed at making scientific language more accessible and understandable for patients and study participants. Spearheaded by creators such as Jill Feldman and others from various institutions, the mission is to minimize confusion and empower patients by adopting a lexicon within a major pharmaceutical company.<br /><br />The lexicon's goal is to make complex lung cancer research more accessible by using language that is understood outside of the medical community. It is important to note that this initiative does not seek to alter how medical staff communicates with one another but rather to enhance communication with patients.<br /><br />The project implemented a multi-step process resulting in 19 terms grouped into categories like safety, efficacy, and others. Examples include translating "adverse event" to "side effect" and redefining technical terms like "median outcome" with patient-centric interpretations such as explaining implications in terms of patient numbers rather than statistical median values, making them simpler to understand.<br /><br />The results are aimed to influence how lung cancer research and data are communicated, fostering patient inclusivity in discussions about research. It encourages pharmaceutical companies to adopt inclusive language, enhancing patient partnerships and communication.<br /><br />The project acknowledged the contributions of patients, advocates, caregivers, and clinicians and was sponsored by Janssen Research & Development, with editorial support from Lumanity Communications Inc. Terms of advisory roles and contributions from individuals involved in the study, such as JF, ND, HH, onward, were disclosed, acknowledging potential conflicts of interest and financial support received for their involvement.<br /><br />Overall, the study hopes to nurture more constructive and patient-centric dialogues within the lung cancer research arena, hoping to shift scientific discussions towards more patient-centered approaches. The full lexicon and additional details are accessible through a QR code provided in the document.

Asset Subtitle

Jill Feldman

Meta Tag

Speaker Jill Feldman

Topic Patient Advocacy

Keywords

lung cancer

patient-friendly lexicon

scientific language

patient communication

pharmaceutical company

inclusive language

patient empowerment

Janssen Research

medical terminology

patient-centric