STARS Webinar - From WCLC23 to You: Presented by Lung Cancer Research Advocates (with audio translations)-From WCLC23 to You: Presented by Lung Cancer Research Advocates

Video Transcription

Video Summary

The webinar discussed several important projects related to lung cancer research and advocacy. The first project, called Project PEER, focused on understanding how patient experience changes as they move from first-line treatment to subsequent lines of therapy. The study found that there is a decrease in quality of life and an increase in financial toxicity for patients on second and subsequent lines of treatment. The second project aimed to develop a patient-friendly summary report for biomarker testing results. The report would provide information on treatment options and side effects in a format that is easier for patients to understand. The third project focused on addressing the stigma associated with lung cancer. A language guide was created to promote empathy and non-judgmental language when discussing lung cancer. The project analyzed presentations from a conference to assess the adoption of non-stigmatizing language. The fourth project aimed to explore the experiences and preferences of people impacted by lung cancer across the care pathway. The study identified areas for improvement, including early diagnosis, communication, and support during and after treatment. Overall, these projects highlight the importance of research and advocacy in improving outcomes and quality of life for lung cancer patients.

Asset Subtitle

(English)

Keywords

lung cancer research

advocacy

Project PEER

patient experience

financial toxicity

biomarker testing

patient-friendly summary report

stigma

care pathway